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Month: December 2016

What? More chemo?

Yesterday, my oncologist said he wasn’t planning anymore chemo, since the margins were so clean and I reacted so badly to it. I didn’t really listen to the part where he said, “depending on the decision by the tumor board.”

The tumor board met this morning, and is of the collective opinion that I need 3 more rounds of chemo after the reconstructive surgery. My oncologist actually sought me out where I was waiting at the surgeon’s office for my post-op checkup to tell me in person.

I burst into tears.

He says this time they would just do the adriamycin, and not the cisplatin, so it shouldn’t be so bad. I guess I have a couple of months to reconcile myself to it.

Or I could refuse.

When the surgeon arrived later, he had the same message. The tumor board ‘overwhelmingly recommended’ additional chemo. I didn’t cry again, though. I had gotten it out of my system.

They took out the stitches and the drain, so there was some consolation. I can take the sling off to shower, now.

The shoulder still aches big time. I tried to clean up for house guests, and it’s turned into me sitting on the couch shouting instructions to Sarah. Bring that here for me to look through. Put this in recycling. Etc. She’s putting up with it pretty well so far. I’m lucky I have such a good helper girl.

And such good helper friends. It helps a lot to know that I’ve got support. Thanks guys.

Good Margins

Pathology came back from the most recent surgery, and the margins all came back negative. I should hope so, since they clipped off an inch or so from my clavicle, just to be sure. The drain stays for another week, but it doesn’t bother me too much. They also said I could start taking my elbow out of the sling to stretch it as long as I was careful not to engage the shoulder. That’s an improvement. Still sleeping a lot.

Scapulectomy

I’m home. I ache. I’ve got a drain still in (Sarah is fascinated by it). It was heartening to see all the well wishes when I got home. Thanks guys. Trying to find a comfortable position on the new couch…

Tommy the Cat

When I was a kid living in Augusta, Georgia, we had a wilderness just beyond our back yard. There was a stream going through some woods, populated with roving dogs and deadly snakes.
Our intrepid tom cat, imaginatively named Tommy, was attacked by a dog, or several, once in that wilderness. He dragged himself all the way home, his shattered leg dangling behind him. We didn’t know if he was going to make it. The vet had to remove his femur completely. Being a cat in the early 80’s, there weren’t any fancy 3D printed replacement femurs, so he just had to do without.
When we picked him up from the vet, he was shaved and stitched and groggy. They had given us a box to transport him. The whole ride home, he pulled himself up on his front legs so he could see us all and meowed longer and louder than I had ever heard him. “I don’t know if you all know, but I have just been to hell. I’m so glad to be here with you, I can’t even say.”
There was something about how urgently he pulled his torn body up in that box to be with us that has always stuck with me.
I’ve been feeling like that a lot lately. I can hear the meowing in the back of my head.
Anyway.
Here are my shoulders. I’ve always been vain about them as one of my best features. Not necessarily in how they look, but how strong they are. Were.
Wave goodbye to the left one.
Even after I get the reconstruction, this will be a Frankenstein mess of scars that will never quite work like it used to.
So many people I know have had breast cancer (four in the last year), that I’ve put a lot of thought into whether or not I would go for reconstruction, if it happened to me. And I’ve thought, no. Good riddance. I’m done with boobs. I realize very different calculations happen for everyone, but for me it would be like losing my hair. Every once in a while I catch myself in the mirror and am surprised again at my shiny baldness, and the most response I can muster is, “Oh. That happened.”
But the idea of my arm hanging helplessly off my body makes me nauseous. This must be how other people think about their hair. Or their breasts. A desecration of the sacred body with all its pieces on, the way it should be.
“Your hand will still work fine,” says the surgeon. “You just won’t be able to put it where you want it.”
Well. That makes it okay then.
He tells me that some people don’t even bother with the reconstruction. But then, he acknowledges that their back and neck get sore from maintaining the asymmetry. I’m not sure what he was trying to convince me of. That it’s not so bad?
Obviously, there are worse things. There are always worse things. I don’t care about those things (with the exception of possibly actually dying). This is what I lose sleep over right now.
But what happened to Tommy the Femurless Cat? He never even had a limp. He even once chased and took down a jack rabbit bigger than himself. It was impossible.
Maybe I’ll turn out like Tommy.

Facial Hair

TMI! While parts of my face remain naturally furry, the hair has fallen out of other parts of my face. Those parts of my face feel a bit like rubber. On the bright side, the chemo killed all my whiskers. (I knew it wasn’t my imagination that those suckers were ‘fast growing’.)