TMI! While parts of my face remain naturally furry, the hair has fallen out of other parts of my face. Those parts of my face feel a bit like rubber. On the bright side, the chemo killed all my whiskers. (I knew it wasn’t my imagination that those suckers were ‘fast growing’.)
Category: Cancer Update (Page 4 of 7)
Saw the surgeon today. Had to wait over an hour (why is that considered normal?). The tumor has grown a little bit, according to the most recent MRI. The chemo may or may not have slowed it down.
Re Fancy Drug Trial: It’s only Phase 1. That makes it a lot less attractive. Also, given that it’s already grown a little bit despite being exposed to some of the most toxic substances deliberately given to humans, we’re more inclined to just want it out.
Re WTF Scapula Not Done Yet: The surgeon is going to meet directly with the company on Friday, and ask if I can be jumped the queue, since cancer patients aren’t considered as having ‘elective’ surgery.
Re Resection w/o Reconstruction: Yes the arm just hangs there (shudder), but you can still use the hand and forearm.
If we can get the scapula done faster, we’re going to wait a little and do everything at once.
If we can’t get the scapula done faster, we’re still going to take the tumor out, hopefully in December, but there will be another surgery in January for reconstruction.
The whole thing just makes me tired. Or maybe that’s the 3 hours of sleep I got last night.
Ugh. The hospital just called to tell me the chrome scapula won’t be ready until mid-January, did I still want to keep my resection date of 12/5? Ugh! No. We’re meeting with the surgeon tomorrow to go over it.
The CT scan of my chest was clear yesterday, okaying me for surgery (still no metastases). Tomorrow we do an MRI so they get a clearer idea of where all the cutting will be taking place. The surgery might take place as early as 12/5, but there’s some confusion over whether they’ve finished making the scapula yet (which might be made out of cobalt chrome). I’m still having trouble with reflux, but Damon’s magic potion of baking soda gets me through meals fine.
So the new plan involves maybe no more chemo. Next Monday I get a CT of the shoulder with contrast and meet with the oncologist. Wednesday I get an MRI of the shoulder and meet with nobody. (I’m sure a follow-up will appear in my future.) Maybe the next thing really is the surgery? In any case, all that time I was going to be spending as an inpatient next week getting infusions… well I’m not.
I suggested today that maybe we skip round 3 of chemo and go straight to surgery, and my oncologist said, “Hm. That might be a good choice. Let’s talk to your surgeon.”
Going home this afternoon.
This is a feelings package. Open it.
Hello new platelets, so we don’t experience any confusion, I am your new overlord. Not the other way around.
I ‘m so tired y’all.How do Iget out of the fog to get actual sleep? ativan, robitussin, chloride zofran
